How many of you have heard, I wonder, that after being pregnant and breastfeeding it’s advisable to go for a mammogram to check all is in order? I’ve been told that three times now, at two separate NHS hospital breast clinics, yet my local GP seems surprised by this…
I would have been none the wiser too, if it weren’t for the fact I developed mastitis and milk cysts in January 2015 in the early stages of breastfeeding MiniM#1. Luckily a trip to Pembury hospital and young doctor brandishing a giant needle put pay to my pain. I even got to watch the ultrasound replay of the milk being siphoned off, which was perversely fascinating. It was then I was told to come back for a mammogram when I’d finished breastfeeding.
Except I was pregnant again with MiniM#2 before I’d stopped breastfeeding MiniM#1. And the mastitis returned after giving birth again. I returned to Pembury but no milk cysts this time. Just a reminder to get a mammogram when I’d finished breastfeeding.
When MiniM#2 was 6 months old I received a letter from Pembury hospital inviting me back for a mammogram but I was still breastfeeding so couldn’t attend. I remember being put on hold for ages when trying to cancel my appointment. I was busy, still trying to run my own business while simultaneously look after a 6-month-old and a barely 2-year-old. I was passed to several different members of hospital staff, but never connected with the right department. In the end I left a message with someone to cancel it for me, never certain that they actually had.
If it proved that tricky to cancel an appointment, I imagined it would be even trickier to reschedule an appointment when I didn’t even have the correct number to call and the referral had come direct from the hospital and not my GP.
Yet, my ‘missed mammogram’ nagged away at the back of my mind. Then in January this year, I heard reported on BBC 4’s Today Programme (also on BBC News online) that mammograms were recommended for detecting cancers in 35 to 39-year-olds ‘at risk’ and that NHS screening often starts at the age of 40 for women with a family history.
I was 40 and had a family history – my grandmother was diagnosed with breast cancer and my aunt with ovarian cancer. And I’d just finished watching Series 8 of Cold Feet, blubbing away at Jenny’s diagnosis…
So I called my local GP. The receptionist said I only had to be 25 for a mammogram, before twigging that was smear tests and I actually had to be 50 (!) I insisted and finally spoke to a doctor, who eventually agreed to see me (purely based on the fact I had erroneously told her my grandmother was in her 50s when she was diagnosed with breast cancer – my mother later told me she had been 62!)
Exactly two weeks ago, the doctor examined me and found a ‘sizeable lump’ near my right underarm and said I would need to be fast-tracked for a mammogram.
I tried not to, but inwardly I panicked. Of course I did. Compounding matters, that very day I was asked to work on a PR project for one of my French clients who had invested in a company specialising in artificial intelligence for breast screening to better detect breast cancer. I had to market the story and secure an exclusive with the French national media.
My appointment was today at Maidstone hospital. A registrar quickly examined me – telling me, again, I should have had a mammogram after pregnancy and breastfeeding – and then I was bundled off for a mammogram. The wonderful news I was in the clear was slightly dulled by DH rushing off in the wrong direction to the car park in his haste to return to work, without so much as a celebratory hug, or listening to me saying we were going the wrong way…
And then I began to worry the registrar had examined me too quickly. What was the lump? And the mammogram didn’t even target the area the original doctor had found the supposed lump so what if the registrar missed it?
So I called my local GP back. “You should have told this to the registrar at the time,” I’m told flatly by the receptionist, after explaining my need for another appointment. “You should have told him to check the correct place.” I’m almost speechless at the receptionist casting judgement!
“Yes I should have done,” I managed to muster. “But it wasn’t the most relaxing environment: having a male registrar feel my breasts while a nurse looked on, with my husband sitting on the other side of the screen.” I wasn’t exactly going to say ‘oh feel them a bit more please…’.
“And I believe it’s common in worrying situations not to say things you later wish you’d said,” I continued diplomatically (knowing that when I’d hung up there’d be things I wished I’d said to her….). There was a pause. “The doctor can see you in an hour,” she said. “And she’s very nice…”
She was very nice. And I definitely don’t have any lumps; it was probably just glands or hormones that the previous doctor had felt. But she appeared surprised I had been advised to have a mammogram simply because I’d been pregnant and breastfeeding.
In my mind I’m relieved to have insisted on having that mammogram and the extra checks. It’s certainly put my mind at rest after four years of niggling worrying about missing that mammogram. And I’m glad to have this worry out the way for tomorrow’s call I’m hosting between French national daily Les Echos and the pioneering breast screening company.
But if it’s such a struggle for women under 50 to have a mammogram, isn’t it time to get some clarity on the risks given there’s such conflicting information out there? I worry about all those women whose lumps go undetected until it’s too late.
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A slightly despairing, less polite email to my next-door neighbour last week. She still hasn’t replied. Coq-au-vin anyone?!